Sun-Beams is a collection of links to stories, articles, photos, or videos I have come across that I believe will inspire, inform, or encourage you, as well as my favorite photo posted on my other blog, Violet Film, from the past week.
One of my pet peeves is when I see news articles that refer to Down syndrome as a “disease.” Most of the time I let it slide and just fume a little about it inside, but this week a story popped up in my reader and I couldn’t resist leaving a comment about the headline – “UC Davis to study new treatments for fatal childhood diseases”. I took a screenshot of the page (shown below) and left a comment.
Because it just wasn’t acceptable to me to let it go – Down syndrome is not fatal, not a disease, and not limited to childhood.
— 2 —
So as I was typing these snippets I decided to check the article again and see (a) if the comment I left was published, because when I submitted I got a response that it would have to be approved, and (b) if the headline had been changed based on my comment. The answers are yes and yes, but I don’t think the revision is all that stellar, either.
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As promised, I give you video of Wednesday night’s bike expedition. More on the bike next week – in short, it’s so awesome that I’ve already finished a post about it.
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Recently, I asked my friend Sarah whether or not she drives (Do you read her yet? If you have a kid with CP, you should!). I don’t even remember why I brought it up, but she graciously answered my questions and even went a step further and wrote a full post about it.
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I don’t want to spend too much time on the whole Abercrombie & Fitch debacle, but Kristen Lamb had another great piece this week on the dustup. Worth the read just for the entertainment value!
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School is (almost) out for summer – do you know what that means? Time to get serious about potty training. I have been dreading this event (and procrastinating for months…) but I can’t put it off any longer. He’s had a few successes, but mostly he just likes to sit on the potty for a few minutes, give me a gigantic grin, then move on to other things.
I think it’s time to pull out the big guns – moving the potty to the living room and going pants-less in the yard. Is there a patron saint of potty training? I need some intercession. STAT.
And just a reminder about Seven Snippets: I’m discontinuing them effective this week. The linky tool is gone, but if you want to keep on snippeting you can link them in the combox.
The three-wheel bike arrived at our house during dinner last night, courtesy of Emily (the kids’ fave babysitter, former CCD teacher, and physical therapy assistant), and despite the fact that we didn’t have the toe clips screwed on and no good straps to use in a pinch, Sarah Kate had to ride it Right. Then. [...]
On Monday, a verdict was reached in the case of Kermit Gosnell: guilty of the murder of three babies, guilty of involuntary manslaughter in the overdose death of a female patient, and guilty of a host of other lesser charges. Did you read the grand jury report? I tried but had a difficult time with [...]
Sun-Beams is a collection of links to stories, articles, photos, or videos I have come across that I believe will inspire, inform, or encourage you, as well as my favorite photo posted on my other blog, Violet Film, from the past week. Cerebral palsy can’t stop Gregori runner – I’m always a sucker for a [...]
— 1 — Apparently, fathers are for setting poor examples. After grilling our dinner the other night, Mr. Andi brought a leaf in with him and was blowing on it, trying to make some kind of noise (I’m not sure what…I’m not up on my leaf noise making skills). I gently suggested that maybe putting [...]
It’s been a tough softball season. Sarah Kate’s team wasn’t very good, combining 8U with 6U wasn’t ideal, and despite being better at hitting the balls this season, Sarah Kate seemed to always hit them in the fielding “sweet spot,” giving her little chance to get a single, much less score. She had lots of [...]
Tonight is the last softball game of the season, and more than likely the last of Sarah Kate’s short but notable softball career. It’s been a lot of fun, a little pain, and a good learning experience for all of us. Including Nathan. I’ve never been under any delusions that either of my kids will [...]
It’s my turn again to blog over at Sarah’s today. Sarah and I “met” through our love of photography and the shared experience of having a child with cerebral palsy. It begins: The path to parenthood for Mr. Andi and I wasn’t easy – loss, infertility, and a touch-and-go start when Sarah Kate was born ended our dream [...]
Sun-Beams is a collection of links to stories, articles, photos, or videos I have come across that I believe will inspire, inform, or encourage you, as well as my favorite photo posted on my other blog, Violet Film, from the past week. Couple Sues After Photo of Their Son With Down Syndrome Is Altered - The [...]
Welcome! My name is Andi.
I'm an ordinary mom with extraordinary kids, living an ordinary yet extraordinary life. Join me as I navigate the waters of life with a daughter with cerebral palsy, a son with Down syndrome, an adventurous husband, a wild Westie, a rescued Schnoodle, a camera, and a worn out pair of running shoes.
Sarah Kate was our miracle baby, born too early and way too small for comfort. She was a fighter from Day One and doesn't know the meaning of quit. Oh, and she's hilarious to boot.
Read posts about Sarah Kate.
The name Nathan is derived from Nathaniel, which means "gift from God" and he is just that - in more ways that one. He's joyful, devious, sneaky, and yes, his eyes really are that blue.
Read posts about Nathan.
Mr. Andi is pretty visible in real life, so he prefers to keep a lower profile online. He is an avid reader of the blog, so I'm taking a chance that he won't notice that I've put his photo up! Mr. Andi loves anything outdoorsy - fishing, hunting, you name it.
Read posts about Mr. Andi.
For her 10th birthday, Sarah Kate asked her friends to donate to Dayna's fund in lieu of gifts. She chose Dayna because she has Down syndrome and her (soon to be) adoptive older sibling has cerebral palsy.