Sun-Beams is a collection of links to stories, articles, photos, or videos I have come across that I believe will inspire, inform, or encourage you, as well as my favorite photo posted on my other blog, Violet Film, from the past week.

According to Jenkins, Best to Keep a Person With Down Syndrome at Home – A spotlight on the letter to the editor written by the brother of the Frederick County Sheriff regarding the Ethan Saylor case. This kind of thinking is, unfortunately, still widespread.

For Barry Trotz and wife, transition to Washington centers around son with Down syndrome – A lovely vignette of the Trotz family and the challenges they are facing in the move to Washington

Learning When (Not) to Talk to Strangers About My Child’s Disability – Raise your hand if you’re a special needs mom and you’ve done what she did. I know I’m guilty.

Increasingly, Adults With Down Syndrome Face Alzheimer’s – A thoughtful look at the realities of this dreaded disease

Cerebral palsy doesn’t stop Zephyrhills High swimmer – Hoping this will be Sarah Kate in a few years!

Photo of the Week:

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— 1 —

You want to see what progress has been made on the Fire Truck Bed, right? Well, your wish is my command:

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This photo was taken Wednesday night, before Mr. Andi built the steps (which will double as storage). It’ll probably be a couple more weeks before it’s completely finished – we (read: Mr. Andi) don’t have a lot of blocks of time over the next several days in which to sand and paint, plus we still need to buy a mattress.

— 2 —

Sarah Kate’s first band performance is coming up in a few weeks: pep music at the high school football game. Should be … something. They still only know three notes, but have begun to put those three notes in different combinations other than the first three notes of “Three Blind Mice.” Ahem…

— 3 —

Remember on Tuesday when I mentioned Stella’s traumatic haircut? She wasn’t the only one who was traumatized. After everything shook out and I got a good look at it, I realized I had BUTCHERED THE DOG. She doesn’t look quite as bad as she did when we first got her, but it’s close.

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— 4 —

When I was in NYC on Tuesday, I was sitting at a table with several bloggers and some of the ladies of BlogHer, including Ellen Gerstein. She mentioned that she ran the 10K at Disney Princess Half Marathon weekend this year. We chatted about the race and I noted that my kids did the kids’ races, as well. She told me that her son ran the 400 meters, so I asked if she was there for the one mile just before it.

“Yes!” she said, “When that little girl finished pushing her wheelchair?!?”

I sat a little straighter in my chair and told her that the little girl is my daughter.

— 5 —

Also while I was in New York, multiple people thought I was from Texas. I guess they saw these, heard the accent, and figured that was a good guess.

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— 6 —

A few of you weighed in last week on the Elsa v. Anna debate, and I thought both sides had good points. I wish I’d asked you all to also tell me where you are in birth order in your families. Sarah Kate and I both like the older sister, Elsa, best, while my sister and at least one commenter (my friend Katie) who are the babies of the family chose Anna.

— 7—

The new bike pedals are working GREAT. Sarah Kate no longer has any fear about hopping on her bike and riding down the street, which is a tremendous benefit because riding the bike not only allows her freedom, it’s good for her still-rehabbing legs. She was even able to walk a half mile at running club on Wednesday (yes, she’s in running club again and no, I didn’t think it was a good idea to go back just yet), which I am at least partially attributing to the bike.

Have a great weekend!

This post was inspired by and is linked to Conversion Diary‘s 7 Quick Takes.

 

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How to Be a Loser Tourist in NYC

September 25, 2014

I took a whirlwind trip to New York this week. I left around 9:00 on Monday morning and flew back on Tuesday, arriving home just after 9:00 p.m. If you follow me on Twitter, you may have seen some tweets from me about what I was doing, but if not, I’ll be writing more about […]

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Weekend Warriors

September 23, 2014

On Saturday night, I was sitting on the couch with a traumatized Stella in my lap (we shaved her – it wasn’t fun) and I got to thinking: this blog used to be all about our daily life, with much (most?) of it in photos, but over the past several months it really hasn’t been. I think […]

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Sun-Beams: September 21, 2014

September 21, 2014

Sun-Beams is a collection of links to stories, articles, photos, or videos I have come across that I believe will inspire, inform, or encourage you, as well as my favorite photo posted on my other blog, Violet Film, from the past week. Boy’s ‘True Colors’ Cover Reminds World His Sister With Down Syndrome Is Like Any […]

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Seven Snippets: Zoom Ball, Waiting Room Therapy Sessions, and Pick a Sister: Elsa or Anna

September 19, 2014

— 1 — If your child goes to physical therapy, are you familiar with Zoom Ball? Because we most certainly are. In 2006, I have a photo of Sarah Kate playing Zoom Ball with her therapist, Carrie, in Birmingham following her rhizotomy. In 2014, I have an almost-identical photo of Sarah Kate playing Zoom Ball […]

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Special Needs Land Mine: The Fast Food Play Area

September 18, 2014

I can remember it like it was yesterday. Some of the moms of kids in Sarah Kate’s preschool in Decatur, Alabama decided to get together for coffee at the McDonald’s near I-65. We were all navigating the chaos of having preschoolers at home – those years when you do your best to talk to your […]

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Two for Tuesday: Cord Blood and Miracle Marathon

September 16, 2014

I know, I know … I’m supposed to do the “odds and ends” types of posts on Fridays, but sometimes things just pop up and I realize I’ve gotta throw some stuff out there NOW, not on Friday. So without further ado… —– 1 —– Miracle Marathon starts TODAY! Sarah Kate had hoped to be […]

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Want to Get Healthy?

September 15, 2014

Y’all. I know I talked about it a little on Friday, but I just couldn’t let it go by without another mention. We all want to make better health and lifestyle decisions for ourselves and those we love. We want to lose some weight, have more energy, use greener products, create nutritious meals for our families, […]

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Sun-Beams: September 14, 2014

September 14, 2014

Sun-Beams is a collection of links to stories, articles, photos, or videos I have come across that I believe will inspire, inform, or encourage you, as well as my favorite photo posted on my other blog, Violet Film, from the past week. Ohio Teen With Down Syndrome on a Mission to Serve at Mass in All […]

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