The title of this post makes it sound a whole lot more fun than this week has actually been. We started the week by driving up to Birmingham on Monday morning – we were “on standby” for a sleep study. We got the call on Monday just before lunch to be there at 6:30 on Tuesday. I’ll skip over the details for now and cut to the chase: Nathan does have sleep apnea. An adenotonsillectomy is forthcoming.
In addition to Nathan’s sleep study, pulmonary, and ENT appointments, Sarah Kate went to see the orthopedist this week. The last time she went was a couple of years ago so it was “time” to check in again. The good news is that he’s satisfied with her progress for now and told us she can wait another two years to come back. Each time we go there’s the chance that he’ll recommend surgery, so I feel like we’ve been granted a stay of execution for a while longer.
One bright spot in the Spring Break tour of Children’s Hospital is a little chat I had with a lady in the marketing/comm department. They are interested in including our family in their Child of Children’s campaign. It’s an ongoing effort they have to highlight the stories of children who are or have been patients there. The stories are used in print and web communications and occasionally even billboards.
So that’s two magazine covers, a Cascade DAFO ad, and an as-yet unspecified hospital campaign between the two of them. The kids are doing alright. Still waiting for that multimillion-dollar modeling contract, though…
When you have non-typical children, “it’s always something” so you tend to adjust your expectations in a lot of ways. Without further adieu, I give you the text thread between Mr. Andi and I wherein I let him know that a slot had opened up for Nathan in the sleep lab.
Weeks like these are when I remind myself to take things one day at a time. I’m a worrier by nature, but if I had spent each day fretting about whether or not Nathan might need to use a CPAP machine, or how I would manage a release surgery for Sarah Kate, or any of the other hundreds of things that “could” have happened but didn’t, I’d be a mess right now. As it is, I’m just a little tired and about three hours late with my Snippets. I can live with that.
One sad anecdote from the week: one of the therapists from Children’s was in ortho clinic yesterday seeing the kids with CP. We’ve known her since before Sarah Kate had her rhizotomy seven years ago, and saw her a minimum of twice a week for a year, though it’s been a few years since we saw her because when we’ve gone up there the past few times we went to a different office and only saw Miss Carrie. When she came in, Sarah Kate had absolutely no memory of having met her before. It was stunning and a little sad.
And to round out the Snippets on this Good Friday, don’t miss this video. I wish I had this kind of mad hula-hooping skillz. The first 20 seconds are a little slow but then it picks up in a big way.
Have a great weekend!
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This post was inspired by and is linked to Conversion Diary‘s 7 Quick Takes.