Seven Snippets: May 17, 2013

May 17, 2013 · 8 comments

in Other Sunshine

— 1 —

One of my pet peeves is when I see news articles that refer to Down syndrome as a “disease.” Most of the time I let it slide and just fume a little about it inside, but this week a story popped up in my reader and I couldn’t resist leaving a comment about the headline – “UC Davis to study new treatments for fatal childhood diseases”. I took a screenshot of the page (shown below) and left a comment.

UCDavis-Article-1

Because it just wasn’t acceptable to me to let it go – Down syndrome is not fatal, not a disease, and not limited to childhood.

— 2 —

So as I was typing these snippets I decided to check the article again and see (a) if the comment I left was published, because when I submitted I got a response that it would have to be approved, and (b) if the headline had been changed based on my comment. The answers are yes and yes, but I don’t think the revision is all that stellar, either.

UCDavis-Article-2

Oh, well.

— 3 —

As promised, I give you video of Wednesday night’s bike expedition. More on the bike next week – in short, it’s so awesome that I’ve already finished a post about it.

— 4 —

Recently, I asked my friend Sarah whether or not she drives (Do you read her yet? If you have a kid with CP, you should!). I don’t even remember why I brought it up, but she graciously answered my questions and even went a step further and wrote a full post about it.

— 5 —

I don’t want to spend too much time on the whole Abercrombie & Fitch debacle, but Kristen Lamb had another great piece this week on the dustup. Worth the read just for the entertainment value!

— 6 —

School is (almost) out for summer – do you know what that means? Time to get serious about potty training. I have been dreading this event (and procrastinating for months…) but I can’t put it off any longer. He’s had a few successes, but mostly he just likes to sit on the potty for a few minutes, give me a gigantic grin, then move on to other things.

I think it’s time to pull out the big guns – moving the potty to the living room and going pants-less in the yard. Is there a patron saint of potty training? I need some intercession. STAT.

— 7—

And just a reminder about Seven Snippets: I’m discontinuing them effective this week. The linky tool is gone, but if you want to keep on snippeting you can link them in the combox.

Have a great weekend!

This post was inspired by and is linked to Conversion Diary‘s 7 Quick Takes.

If you enjoyed this post, download my FREE eBook, There's Sunshine Behind the Cloudsa resource for special needs parents. There’s Sunshine Behind the Clouds: Surviving the Early Years as a Special Needs Mom is for every mother of a child with special needs who is at the beginning of the journey, struggling to gain her footing on ever-shifting sands. It focuses on how to not only survive the emotional roller coaster of special needs parenting, but enjoy the ride.
Galit May 17, 2013 at 7:54 am

The bike video is awesome! I love how she figured out how to get more power behind the pedals when she started to stall towards the end.

Re potty-training: Check out “Toilet Training in Less Than a Day” by Azrin and Foxx. Method was originally developed for brain injured and developmentally delayed children. I used it with all 5 of my (typical) children around age 2. I wrote about it here: http://matir-asurim.blogspot.com/2012/08/ot-potty-training-mater.html

Megan May 17, 2013 at 8:11 am

Oh my goodness, this video just makes me grin. What a great memory.

Sarah May 17, 2013 at 8:34 am

I made it to #4! As uncomfortable as that post was to write I’m glad I did it.

Jennifer May 17, 2013 at 9:46 am

I’m also jumping into the adventures of potty-training…I love your comment about it on #6! Carson has surprised me by using the potty, even the big potty, whenever we change him or ask him to, we just haven’t reached the stage where he knows when to go on his own. I have a handout from the autism clinic, which I thought was useful at first, but now that the actual act is not the problem, I’m at a loss again! Fun times…

Micaela @ California to Korea May 17, 2013 at 10:11 am

I am SOOO with you on potty training. And good for you on 1 and 2. Argh.

Considerer May 17, 2013 at 4:19 pm

Beautiful video.

Marie May 19, 2013 at 2:56 am

I feel the same way about autism, it’s not a disease and not something to be cured!!! Just like Down Syndrome kids need extra help to learn, autistics need extra help with social skills and language. But not a cure! Good for you for saying something.

Kim May 20, 2013 at 1:14 pm

You may like this blog on motherhood: http://lionofdesign.blogspot.com/

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