The Boy & Down Syndrome

The ABC’s of Patience (That I Need to Learn)

November 25, 2014

He brings me a small stack of cards. I’m not sure why he doesn’t bring me the whole box of 52, but he doesn’t. He prefers to bring them in smaller batches. It could be that he simply likes the feel of the cardboard in his little hands, knowing that he is in control of […]

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My Other Last Place Finisher

November 18, 2014

He isn’t as famous as his sister, he wasn’t spotted by (nor did he pose for a photo with) a stranger. He didn’t struggle through rehab to get to this point, and I’m not sure he even realized he was going to run until we showed up and pinned a number to his back, but I’m still […]

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The Many Faces of Down Syndrome

October 30, 2014

I’ll be honest – this call for photos for Down Syndrome Awareness Month was kind of an afterthought, triggered by Ellen’s recent Parents post. But I am SO. GLAD. I did it, because now my blog is filled with all of these beautiful faces. How about that handsome guy, Troy (and his handsome pup), up top? […]

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The Myth of the Fenced Backyard

October 23, 2014

Three years ago, Mr. Andi, with the help of a neighbor, built our backyard fence. Back then, he was in a race against time before Nathan started walking (which would lead to escaping). We opted for a wooden picket fence because we had grown used to the vast expanse across our yard and our back-door […]

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Why Our Buddy Didn’t Walk This Year

October 21, 2014

Had you noticed I haven’t mentioned Down Syndrome Awareness Month this year? Every October since Nathan was born in 2010, our family has participated in a local Buddy Walk for Down syndrome. Well … it’s kind of local. We walk with the Down Syndrome Society of Mobile County (DSSMC), but we don’t live in Mobile County. […]

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Nathan’s First Fun Run

October 7, 2014

You saw the picture on Sunday. Nathan looked “all grown up” – ready to attempt his first 1-mile fun run. He was looking at the camera, smiling broadly, as if to say, “I got this.” The reality? Not quite as smooth as you might expect. It was a last-minute decision to put him in the race. […]

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Nathan and the Green “P”

August 5, 2014

Several weeks ago, I expressed my frustration to G, Nathan’s speech therapist, about how he chews his shirts, the tails of stuffed animals, and other inappropriate objects around the house. She ducked into the back and reappeared with two pieces of tubing – green and blue – that she had cut off of a roll […]

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We Had a Good Run, But Now It’s Over

July 31, 2014

Remember back when we moved Nathan to the big boy bed, but he wouldn’t nap in his room because … daylight … or something? Back when my queen size bed was converted, like clockwork, into a jump-jump each afternoon? No? Then feel free to read up on it here and come right back. But then […]

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Nathan, the Very Worst Brother

June 10, 2014

This past Sunday at Mass, just prior to the homily, our priest introduced a host of visiting seminarians. One is “interning” with our parish for a couple of months this summer, and the other four are visiting this week from the religious order Institute of the Incarnate Word (abbreviated IVE for the Spanish Instituto del […]

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The Words I Was Sure I’d Never Say

May 22, 2014

Another school year has come and gone. Come August, Sarah Kate will move up to the sixth grade, and Nathan will be in Pre-K. We’ve registered him for three days a week again at the same private preschool he’s attended the past two years, and of course, he’s also still eligible for the developmental preschool […]

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