The Boy & Down Syndrome

Nathan and the Green “P”

August 5, 2014

Several weeks ago, I expressed my frustration to G, Nathan’s speech therapist, about how he chews his shirts, the tails of stuffed animals, and other inappropriate objects around the house. She ducked into the back and reappeared with two pieces of tubing – green and blue – that she had cut off of a roll […]

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We Had a Good Run, But Now It’s Over

July 31, 2014

Remember back when we moved Nathan to the big boy bed, but he wouldn’t nap in his room because … daylight … or something? Back when my queen size bed was converted, like clockwork, into a jump-jump each afternoon? No? Then feel free to read up on it here and come right back. But then […]

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Nathan, the Very Worst Brother

June 10, 2014

This past Sunday at Mass, just prior to the homily, our priest introduced a host of visiting seminarians. One is “interning” with our parish for a couple of months this summer, and the other four are visiting this week from the religious order Institute of the Incarnate Word (abbreviated IVE for the Spanish Instituto del […]

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The Words I Was Sure I’d Never Say

May 22, 2014

Another school year has come and gone. Come August, Sarah Kate will move up to the sixth grade, and Nathan will be in Pre-K. We’ve registered him for three days a week again at the same private preschool he’s attended the past two years, and of course, he’s also still eligible for the developmental preschool […]

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TOTS Soccer: Splendor in the Grass (More Like “Kick in the Grass…”)

April 29, 2014

Yep. I forgot to blog about soccer. I KNOW, RIGHT? How could I possibly forget to post pictures and talk about Nathan’s soccer debut, when I’ve covered Sarah Kate’s swim team and softball exploits ad nauseum? But forget I apparently did, because the only things I can find on the blog about soccer are the photo above […]

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Four

March 13, 2014

Yep. Nathan turns four today (and Mr. Andi turns 44). 2010 2011 2012 2013 Happy Birthday, Nate-Nate! For Nathan’s birth story, go here, here, and here.

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The Other – Much Less Dramatic But No Less Fun – Disney Kids Race

March 4, 2014

What can I say about Nathan’s race, which immediately followed Sarah Kate’s triumph? He was ready to go. Or at least he was ready to give a thumbs up. And based on the graph her Fitbit generated, I think he and Katie ran at least a mile in the corral waiting on us before his […]

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The Music Man

December 19, 2013

The kid loves songs, musical instruments, dancing … you name it. I know it’s supposed to be a myth that people with Down syndrome love music (and maybe it is), but in our house, our boy loves music. If you’ve been reading for awhile, you should recognize the jingle sticks, former residents of Sarah Kate’s […]

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The Adventures of Letterman

December 12, 2013

Faster than a rolling O Stronger than silent E Able to leap capital T in a single bound It’s a word, it’s a plan…it’s Letterman! [Please humor me and tell me you know what childhood television show that quote above comes from...TIP: It's not Sesame Street] I don’t post a whole lot of video here, […]

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Three Reasons Why I Hate Therapy and One Big Reason I Don’t

November 14, 2013

I suppose there are some folks who enjoy taking their kids to therapy. I don’t know who they are, but I figure stranger things have happened. After a decade of therapy, I’m here to tell you: It ain’t no fun. Between the two kids, we’ve done physical therapy, occupational therapy, and speech therapy. We’ve done […]

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