The Girl & Cerebral Palsy

Finish Strong. Never Stop.

November 11, 2014

Seriously, folks. I don’t even know what to say anymore. Sarah Kate made a return to Walt Disney World this past weekend to attempt the Kids’ Mile for the second time (Spoiler: she finished it). If you need to get caught up, read my original blog post about the first attempt here or go watch the […]

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I Can See the Light at the End of the Tunnel, and This Time It’s Not a Train

November 6, 2014

Do you remember this photo? It was taken in January during Sarah Kate’s disastrous fun run attempt – the day we had to cut the course short and I still had to hold her upright to keep her moving forward. What about this one? Several weeks after that top photo, she tried again – and made it. […]

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The Rolling Clarinet

October 28, 2014

Sarah Kate made her band debut on Friday night. The sixth, seventh, and eighth grade band students were invited to participate in the pre-game spirit tunnel and first half pep music at the Mayberry football game. Participation wasn’t mandatory, so I was glad Sarah Kate wanted to join in. Things got off to a rocky […]

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Sorta-Confessions of a CP Parent

October 2, 2014

A couple of years ago, Sarah wrote a post, Confessions From a CP Adult, that I saved to my “Post Ideas” notebook in Evernote. I have dozens of ideas, going back over three years, in that notebook, most of which I will never use. But I re-read Sarah’s post recently and in light of the fact […]

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A Magic Moment for Sarah Kate

September 2, 2014

It’s no secret that it’s been a rough summer. Sarah Kate has handled everything like a trooper, but there’s only some sunshine you can muster when you’re an eleven year old girl cooped up at home being nagged by your mom into doing 45 minutes of exercises three times a day for weeks on end. […]

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A Taste of Freedom Once Again

August 26, 2014

Remember when Sarah Kate first experienced freedom? That three-wheeled bike allowed her to ride around the neighborhood, check in with her friends down the street, and just generally be part of regular kid life in a middle-class subdivision. It was a dream realized not just for her, but for me, as well – not an […]

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Seven Years Ago: Sarah Kate Gets a Throwback Thursday

July 24, 2014

Several weeks ago, I mentioned the idea of adding a “Throwback Thursday”-type post as a regular feature on the blog, since Nathan’s entire preschool-hood is documented here in photos but Sarah Kate got the shaft for the first seven years. crickets chirping I scrapped that idea but I’ve been doing some more organizing of my photos […]

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Freedom Is Still a Little Ways Off

July 22, 2014

On Sunday morning, we resolved to put Sarah Kate on her bike. Her therapists have been advocating it for a little while, but the last time we tried ended in frustration – mine and hers. I hoped things would go better this go ’round. They did. Sort of. It started with me taking her out, […]

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A Challenge For You, From Sarah Kate

July 17, 2014

We learned about the Miracle Marathon this week, and I have to tell you: we’re pumped. When I was first contacted by Children’s of Alabama about the event, I thought, “Hey, why not? I like to run, some of my readers are runners, and both of the kids have been treated at Children’s of Alabama. […]

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Let’s Talk About Therapy. And Spiders. And Russian Astronauts.

July 8, 2014

Spider cage. Thera-Suit. Adeli Suit. UEU. Familiar terms to us, but probably not so much to most people, so how about a quick primer today? Sarah Kate began an “intensive burst” of therapy on Monday – four hours per day for five days. In the past, she’s done several full courses of intensive therapy: four […]

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