Other Sunshine

Two for Tuesday: Cord Blood and Miracle Marathon

September 16, 2014

I know, I know … I’m supposed to do the “odds and ends” types of posts on Fridays, but sometimes things just pop up and I realize I’ve gotta throw some stuff out there NOW, not on Friday. So without further ado… —– 1 —– Miracle Marathon starts TODAY! Sarah Kate had hoped to be […]

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Sun-Beams: September 14, 2014

September 14, 2014

Sun-Beams is a collection of links to stories, articles, photos, or videos I have come across that I believe will inspire, inform, or encourage you, as well as my favorite photo posted on my other blog, Violet Film, from the past week. Ohio Teen With Down Syndrome on a Mission to Serve at Mass in All […]

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Seven Snippets: Sarah Kate Auditions for Glee, I Reveal My “10 Books” and Real Rainbows I’ll Never Forget

September 12, 2014

— 1 — Sarah Kate auditioned this week for Sound Waves, her school’s glee club, and she made it! I think the criteria for selection were lack of fear of singing in front of other people and a reasonable ability to carry a tune, but hey … she not only met, but exceeded (in my opinion!) them. Seriously. […]

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Sarah Kate Takes Over the Blog!

September 11, 2014

Hey everyone, this is Sarah Kate. I’ll be writing the blog today and if you have any questions about Miracle Marathon, today’s the day to ask. First of all, the Miracle Marathon raises money to help benefit Children’s Miracle Network hospitals, for example, Children’s Hospital in Birmingham or Gillette Children’s in Minnesota. I had two […]

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Three Snippets of Nathan’s Mischief, Plus Four Others

September 5, 2014

— 1 — So … my off-the-grid scrapbooking weekend didn’t turn out the way I hoped. My back seized up on me, which made sitting for long periods difficult, AND I got sick with some sort of respiratory bug. However … Auburn won and I got to listen to the game on my tiny speaker, […]

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Saying Goodbye to Mama J

September 4, 2014

Almost four decades ago, my dad met and married a wonderful lady named Betty, and when he did I gained a whole new branch to my family tree – a new sister, new aunts, uncles, and cousins, and another set of grandparents. My new grandparents were never Lora and Ormond Johnston to me – they were […]

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Seven Snippets: Off the Grid, a Fire Truck Bed, and The Great Loaded Potato Crisis of 2014

August 29, 2014

— 1 — I talked in general about 504 plans yesterday, but without many specifics. Sarah Kate’s 504 meeting was Wednesday, which, yes, is pretty quick for the beginning of the school year, but the start of school was a shock to everyone’s system and Nurse Heather pressed to get things set up quickly. In short, the meeting […]

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Let’s Chat About the 504 and the IEP

August 28, 2014

Ah, yes, it’s that time again. The start of the school year, you mean? Well, yes, but it’s also the dreaded season of IEP 1 and 504 2 meetings. Nathan has the first, and Sarah Kate has had both (she has a 504 plan at the moment), so I’ve done both in years past – and […]

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Sun-Beams: August 24, 2014

August 24, 2014

Some days you’re in a tug-of-war between “it’s all good” and “it’s all falling apart” from minute to minute. The first week of school was like that for us (well, me … the rest of the family is probably “all good”). Between Nathan’s potty fails and Sarah Kate’s mobility woes, on Friday night I crashed and burned. […]

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Seven Snippets: Step Counts, Self-Propelled Wheelchairs, and the Sound of Silence

August 22, 2014

— 1 — Remember the FitBit Sarah Kate got last week? Here are the screenshots of her step count on Sunday, followed by one of her step count on Monday, the first day of school. We have some issues, needless to say. — 2 — If you have any advice on self-propelled wheelchairs, I’m all […]

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