cerebral palsy

Freedom Is Still a Little Ways Off

July 22, 2014

On Sunday morning, we resolved to put Sarah Kate on her bike. Her therapists have been advocating it for a little while, but the last time we tried ended in frustration – mine and hers. I hoped things would go better this go ’round. They did. Sort of. It started with me taking her out, […]

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Let’s Talk About Therapy. And Spiders. And Russian Astronauts.

July 8, 2014

Spider cage. Thera-Suit. Adeli Suit. UEU. Familiar terms to us, but probably not so much to most people, so how about a quick primer today? Sarah Kate began an “intensive burst” of therapy on Monday – four hours per day for five days. In the past, she’s done several full courses of intensive therapy: four […]

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How Things Are Really Going

July 3, 2014

No matter where I go these days (which, admittedly, isn’t that many places) or who I talk to, the question I always get is “How are things going?” What people mean, of course, is how is Sarah Kate doing – has she recovered from the surgery, is she progressing in therapy, and so on. I […]

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It’s Here! Sarah Kate Shares With the World #WhyIRunDisney

June 23, 2014

Remember that day when Sarah Kate was The Most Awesome Kid in the World? And remember when the runDisney folks took notice and decided they wanted to share with the rest of the world (you know, all of those folks who weren’t there on that glorious day) how awesome she was? Well, runDisney decided that the […]

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Rehab? … No! No! No!

May 28, 2014

That’s me channeling my inner Amy Winehouse, not Sarah Kate… Seriously, people…this summer may do me in. We started the day with speech therapy for Nathan. I dropped him off, ran two super-quick errands, then went back to the house to load up Sarah Kate to drive over to Mobile for physical therapy. Today was a […]

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My Stand-Up Girl

May 21, 2014

Can you see it? The look of terror on her face? The defensive posture? The stress in the raised eyebrows? Tuesday was Botox day. And stand-for-the-first-time-in-six-weeks day. She survived them both. We saw Dr. Mendoza, the rehab doctor, Lisa, the physical therapist, and Dr. Doyle, the orthopedic surgeon, for her six week surgery follow-up and the […]

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Our Experience with Selective Dorsal Rhizotomy

May 15, 2014

I received an email earlier this week from a mom who wanted more information about selective dorsal rhizotomy (SDR), and specifically about Dr. Oakes, the neurosurgeon who did it. I’ve mentioned several times that she had SDR when she was three, but because I wasn’t blogging then I haven’t provided a lot of detail. Since […]

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Casts Away!

May 8, 2014

On the road again… Unlike the legendary Willie Nelson, I’m not enjoying these road trips very much, and we certainly aren’t going places that we’ve never been. But On the Road Again is our life right now, and will be for awhile longer. (Note: Nathan is using a booster, it’s just not obvious because they […]

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Dem Bones, Part 2: Reader Questions About Sarah Kate’s Surgery

April 24, 2014

On Tuesday, I provided some nuts-and-bolts details about Sarah Kate’s surgery last week. Last week, I provided a more emotional and visual description. I knew when I planned the posts, however, that I would unintentionally omit some things that you may have been curious about. Since I was able to find very little information about the realities […]

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Dem Bones, Part 1: Sarah Kate’s Surgery Cocktail

April 22, 2014

Shin bone connected to the knee bone Knee bone connected to the thigh bone Thigh bone connected to the hip bone Hip bone connected to the back bone…   Dem bones, dem bones gonna walk around. Dem bones, dem bones gonna walk around. Dem bones, dem bones gonna walk around. Now hear the word of […]

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