Our New Normal

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Like moms everywhere, before I became a mom I had a vision of what motherhood would be like, and I also had a vision of what my kids would be like. If you’ve ever visited the blog before today, you know that the reality has been very different. Whereas I had dreamed of a car […]

Sarah Kate’s Surgery Cocktail: One Year Later

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One year ago today, we said goodbye to Sarah Kate as she was wheeled back for her multi-hour orthopedic procedure. It was the culmination of months of struggles, a trip to Minneapolis for a gait study, and a lot of prayers. The doctors considered two different options and ultimately recommended the more invasive of the two because they […]

Sarah Kate’s New Wheels!

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At long last, it has arrived! Two months and a hefty co-pay after we started this process, Sarah Kate is now the proud owner of her very own, not-a-hand-me-down, well-fitting custom wheelchair. You’ve seen the old (loaner) chair in photos when we were at Disney and at her band debut but I thought a closer look might […]

Finish Strong. Never Stop.

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Seriously, folks. I don’t even know what to say anymore. Sarah Kate made a return to Walt Disney World this past weekend to attempt the Kids’ Mile for the second time (Spoiler: she finished it). If you need to get caught up, read my original blog post about the first attempt here or go watch the […]

Could This Tiny Packet Change My Daughter’s Life?

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Strictly speaking: No, because it’s a sample. But packets like it – filled with real blood, not just a demo fluid made to look like it – do have the power to positively impact children with cerebral palsy, autism, diabetes, and other health conditions that have no cure and few treatment options. My recent trip […]

Sorta-Confessions of a CP Parent

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A couple of years ago, Sarah wrote a post, Confessions From a CP Adult, that I saved to my “Post Ideas” notebook in Evernote. I have dozens of ideas, going back over three years, in that notebook, most of which I will never use. But I re-read Sarah’s post recently and in light of the fact […]

Freedom Is Still a Little Ways Off

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On Sunday morning, we resolved to put Sarah Kate on her bike. Her therapists have been advocating it for a little while, but the last time we tried ended in frustration – mine and hers. I hoped things would go better this go ’round. They did. Sort of. It started with me taking her out, […]

Let’s Talk About Therapy. And Spiders. And Russian Astronauts.

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Spider cage. Thera-Suit. Adeli Suit. UEU. Familiar terms to us, but probably not so much to most people, so how about a quick primer today? Sarah Kate began an “intensive burst” of therapy on Monday – four hours per day for five days. In the past, she’s done several full courses of intensive therapy: four […]

How Things Are Really Going

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No matter where I go these days (which, admittedly, isn’t that many places) or who I talk to, the question I always get is “How are things going?” What people mean, of course, is how is Sarah Kate doing – has she recovered from the surgery, is she progressing in therapy, and so on. I […]