Sarah Kate’s New Wheels!

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At long last, it has arrived! Two months and a hefty co-pay after we started this process, Sarah Kate is now the proud owner of her very own, not-a-hand-me-down, well-fitting custom wheelchair. You’ve seen the old (loaner) chair in photos when we were at Disney and at her band debut but I thought a closer look might […]

Finish Strong. Never Stop.

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Seriously, folks. I don’t even know what to say anymore. Sarah Kate made a return to Walt Disney World this past weekend to attempt the Kids’ Mile for the second time (Spoiler: she finished it). If you need to get caught up, read my original blog post about the first attempt here or go watch the […]

Could This Tiny Packet Change My Daughter’s Life?

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Strictly speaking: No, because it’s a sample. But packets like it – filled with real blood, not just a demo fluid made to look like it – do have the power to positively impact children with cerebral palsy, autism, diabetes, and other health conditions that have no cure and few treatment options. My recent trip […]

Sorta-Confessions of a CP Parent

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A couple of years ago, Sarah wrote a post, Confessions From a CP Adult, that I saved to my “Post Ideas” notebook in Evernote. I have dozens of ideas, going back over three years, in that notebook, most of which I will never use. But I re-read Sarah’s post recently and in light of the fact […]

Freedom Is Still a Little Ways Off

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On Sunday morning, we resolved to put Sarah Kate on her bike. Her therapists have been advocating it for a little while, but the last time we tried ended in frustration – mine and hers. I hoped things would go better this go ’round. They did. Sort of. It started with me taking her out, […]

Let’s Talk About Therapy. And Spiders. And Russian Astronauts.

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Spider cage. Thera-Suit. Adeli Suit. UEU. Familiar terms to us, but probably not so much to most people, so how about a quick primer today? Sarah Kate began an “intensive burst” of therapy on Monday – four hours per day for five days. In the past, she’s done several full courses of intensive therapy: four […]

How Things Are Really Going

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No matter where I go these days (which, admittedly, isn’t that many places) or who I talk to, the question I always get is “How are things going?” What people mean, of course, is how is Sarah Kate doing – has she recovered from the surgery, is she progressing in therapy, and so on. I […]

It’s Here! Sarah Kate Shares With the World #WhyIRunDisney

Remember that day when Sarah Kate was The Most Awesome Kid in the World? And remember when the runDisney folks took notice and decided they wanted to share with the rest of the world (you know, all of those folks who weren’t there on that glorious day) how awesome she was? Well, runDisney decided that the […]

Rehab? … No! No! No!

That’s me channeling my inner Amy Winehouse, not Sarah Kate… Seriously, people…this summer may do me in. We started the day with speech therapy for Nathan. I dropped him off, ran two super-quick errands, then went back to the house to load up Sarah Kate to drive over to Mobile for physical therapy. Today was a […]