cerebral palsy

Our Minnesota Adventure, Part 3: The Pendulum Swings

March 20, 2014

On Tuesday morning (and Saturday morning, and Sunday morning, and Monday morning), Sarah Kate had the same breakfast: a giant pile o’ bacon and a chocolate donut. Given that chocolate bacon donuts are a thing these days, I guess it’s not all that odd (she did eat them separately, at least). Her plate was a culinary […]

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Our Minnesota Adventure, Part 2: Gillette Gait Lab

March 18, 2014

Of course, our real reason for being in Minnesota wasn’t electricity, it was the Gillette gait lab. We reported early on Monday morning, stopping at the clinics first for height and weight, then heading downstairs to the gait lab. Sarah Kate changed into shorts and they filmed her from several different angles, walking both in […]

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What It Was Like to Be the Mom of the Most Awesome Kid in the World1

February 27, 2014

It’s been almost a week, and I’m still blown away. After the disaster that was the First Light Fun Run last month, I wasn’t sure Sarah Kate would be able to complete the Disney Kids 1-Mile, part of the Princess Half Marathon Weekend. In fact, “I wasn’t sure” is the understatement of the year – […]

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Time to Choose

February 11, 2014

Remember when I boldly declared – one month ago – that I had picked a Word of the Year? No? Well, that word was CHOOSE. Back then I wrote: “I’m incredibly indecisive, which I’ve mentioned many times before, so I’ll take CHOOSE as a challenge to be better at making decisions. I also need to […]

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Six Tips for Maximizing a Specialty Pediatric Clinic Visit

February 4, 2014

Specialty pediatric clinic visits can be tough. They’re often a long way from home, in an unfamiliar environment, and let’s face it – we don’t take our kids to see pediatric specialists just because we want to stop in and say, “Hi!” or “Look how great things are!” Even after all this time, and as much […]

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The Clinic Visit, Part 2: The Journey Behind Us, The Road Ahead of Us

January 28, 2014

When Sarah Kate had her selective dorsal rhizotomy (SDR) eight years ago, I kept a small blog  for friends and family to follow her progress. I discontinued posting on it several months later when things had settled back down, but I’ve never deleted it in case it could be of help to someone else. At […]

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The Clinic Visit, Part 1: The Nuts and Bolts

January 23, 2014

I have a lot to say about the clinic visit – too much for one post. Today I’ll share an update on what we learned and what’s ahead for Sarah Kate; Tuesday I’ll share more personal thoughts. If you’ve been reading at least since the fall, you know that Sarah Kate has struggled the past […]

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It’s Clinic Day!

January 21, 2014

I’m writing this late on Monday night from my dad’s house outside of Birmingham. I drove up this afternoon, where the kids had already been dropped off by Mr. Andi. He took them to visit his family this weekend and I stayed behind. Despite my best intentions to Do All The Things while I was […]

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Dead Last Finish is greater than Did Not Finish, which trumps Did Not Start

January 16, 2014

A couple of weeks ago, my daughter, Sarah Kate, who has cerebral palsy, came home from running club with a flyer for the First Light Marathon Fun Run – a 1.2-mile event being held in Mobile on January 12. I was registered for the half marathon, and I was happy that she was so excited […]

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In Between: Next Steps for Sarah Kate

December 17, 2013

A part of me wondered if I should write this post – how many people really care about the nuts and bolts and ‘scripts and recommendations specific to my child? It feels a little bit narcissistic to go on and on about what our experiences are unless I can weave in a bit of comedy […]

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