When a Win Doesn’t Feel Like a Win

20150313-31.web

On Tuesday, I shared a few details about the birthday boys, including my favorite gift that Nathan received – a magnetic sight words sentence set. I was uber-proud of him for picking up on the words so quickly, so on Tuesday morning during breakfast when he asked me to play the game with him, I […]

Nathan: Full of Surprises

20111225-25.web

Way back in 2012, when Nathan was not-quite two and a half, his early intervention speech therapist was at the house. He was playing with one of his favorite toys at the time, a green-and-white Leapfrog My Own Leaptop. When he first got it, he loved it – probably because he thought he was getting […]

Fire Ants Suck, and a High Pain Tolerance Can, Too

20141205-6.web

Ants are annoying, nasty, little buggers, but fire ants? A whole different class of insect. I have a lesion from a fire ant bite on my right thumb knuckle right now, and the pain from it – both initially and over the next few days as it healed – felt like a burn from a […]

The ABC’s of Patience (That I Need to Learn)

IMG_4106.JPG

He brings me a small stack of cards. I’m not sure why he doesn’t bring me the whole box of 52, but he doesn’t. He prefers to bring them in smaller batches. It could be that he simply likes the feel of the cardboard in his little hands, knowing that he is in control of […]

The Many Faces of Down Syndrome

Alec

I’ll be honest – this call for photos for Down Syndrome Awareness Month was kind of an afterthought, triggered by Ellen’s recent Parents post. But I am SO. GLAD. I did it, because now my blog is filled with all of these beautiful faces. How about that handsome guy, Troy (and his handsome pup), up top? […]

Why Our Buddy Didn’t Walk This Year

20141020-1-2.web

Had you noticed I haven’t mentioned Down Syndrome Awareness Month this year? Every October since Nathan was born in 2010, our family has participated in a local Buddy Walk for Down syndrome. Well … it’s kind of local. We walk with the Down Syndrome Society of Mobile County (DSSMC), but we don’t live in Mobile County. […]

The Words I Was Sure I’d Never Say

Another school year has come and gone. Come August, Sarah Kate will move up to the sixth grade, and Nathan will be in Pre-K. We’ve registered him for three days a week again at the same private preschool he’s attended the past two years, and of course, he’s also still eligible for the developmental preschool […]

Project SEARCH: A Great Idea Right In My Backyard

I’ve been taking Nathan to speech therapy for several months; the therapy office is in the wellness center building of our local hospital, just a mile from the house. It’s convenient and the people there have been wonderful to work with. Several weeks ago, I noticed a young woman with Down syndrome in scrubs with […]

The Music Man

20131218-1.POTD

The kid loves songs, musical instruments, dancing … you name it. I know it’s supposed to be a myth that people with Down syndrome love music (and maybe it is), but in our house, our boy loves music. If you’ve been reading for awhile, you should recognize the jingle sticks, former residents of Sarah Kate’s […]

The Adventures of Letterman

Faster than a rolling O Stronger than silent E Able to leap capital T in a single bound It’s a word, it’s a plan…it’s Letterman! [Please humor me and tell me you know what childhood television show that quote above comes from…TIP: It’s not Sesame Street] I don’t post a whole lot of video here, […]