Down syndrome

Project SEARCH: A Great Idea Right In My Backyard

February 20, 2014

I’ve been taking Nathan to speech therapy for several months; the therapy office is in the wellness center building of our local hospital, just a mile from the house. It’s convenient and the people there have been wonderful to work with. Several weeks ago, I noticed a young woman with Down syndrome in scrubs with […]

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The Music Man

December 19, 2013

The kid loves songs, musical instruments, dancing … you name it. I know it’s supposed to be a myth that people with Down syndrome love music (and maybe it is), but in our house, our boy loves music. If you’ve been reading for awhile, you should recognize the jingle sticks, former residents of Sarah Kate’s […]

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The Adventures of Letterman

December 12, 2013

Faster than a rolling O Stronger than silent E Able to leap capital T in a single bound It’s a word, it’s a plan…it’s Letterman! [Please humor me and tell me you know what childhood television show that quote above comes from...TIP: It's not Sesame Street] I don’t post a whole lot of video here, […]

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BOOK REVIEW: Just Like Other Daughters (Tearjerker Alert!)

November 7, 2013

Three years ago, when Nathan was only seven months old, I watched the HBO premiere of Monica & David, a documentary about a couple with Down syndrome who marry. The film begins on their wedding day and follows the first year of their marriage, viewed from the perspective of both the couple and the family […]

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A Lot of Buddy, Not Much Walk

October 22, 2013

If you’re expecting a tale of how inspiring and uplifting our local Buddy Walk was, you’re reading the wrong blog. We didn’t field a big team this year – just our family foursome plus one of Sarah Kate’s therapists (yep, you read that right…) We don’t have a Buddy Walk in our county, only over […]

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Five Words I Hate and Why

August 15, 2013

1. Disabled I don’t hate the word disability, but I despise the word disabled – especially when I see it in a headline like this one, or worse, this one. “The disabled” is a lazy way of grouping people with a loose – very loose! – commonality. Sometimes it’s to elicit a sympathetic response, but that […]

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If You Could Turn Off the Extra Chromosome, Would You?

July 25, 2013

News broke recently that a University of Massachusetts Medical School research team has found a way to suppress the expression of the extra chromosome in people with Down syndrome, making it at least conceivable that some of the typical manifestations of Down syndrome could be treated – maybe even prevented altogether if treated in utero. When […]

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Observations from the Airport

July 23, 2013

As I mentioned in last Friday’s snippets, I was in Tucson for a few days; I flew home Sunday night with a layover in Atlanta. The weather was nasty (not unlike what I described in the opening scene of my new eBook…) with lengthy delays and I was hoping for a standby seat on a […]

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Why I’ll Never #StandWithWendy

July 11, 2013

It’s no secret that I’m pro-life. I’ve blogged about it before, but just to clarify: I believe that life begins at conception, and I believe abortion is morally wrong in all instances, even in the oft-cited exceptional cases of rape, incest, and the health of the mother. Rarely, if ever, is a mother’s life in […]

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Did a Stranger Want to Hug Your Kid Today?

June 13, 2013

Our parish has what I’ve heard other parents proclaim as The Best VBS in Town. As a result, our already pretty big parish has a very large VBS, which means lots of folks I don’t know. Or perhaps the reason I don’t know them is because we are the weirdo freak family that has only […]

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