ethics

A Triad of Evil…Delivered On My iPad

May 14, 2013

On Monday, a verdict was reached in the case of Kermit Gosnell: guilty of the murder of three babies, guilty of involuntary manslaughter  in the overdose death of a female patient, and guilty of a host of other lesser charges. Did you read the grand jury report? I tried but had a difficult time with […]

Continue reading…

We Want to Be Treated Like Everyone Else…Except When We Don’t

April 9, 2013

Despite the apparent forcefulness of last Tuesday’s rant on the Robert Ethan Saylor case, I struggled with the decision to post about it. The story picked up a lot of steam following the grand jury’s decision not to indict, but I’d been watching the case for weeks. In fact, I had a draft written several […]

Continue reading…

Who Is To Blame For Ethan Saylor’s Death?

April 2, 2013

I’ve been asked my opinion on the Saylor case, and given that so many other bloggers in the special needs world have posited an opinion, I guess it’s time for me to make my thoughts known, as well. If you don’t know what I’m talking about, first read up on it here. And while you’re […]

Continue reading…

What I Really Want for Christmas

November 26, 2012

A couple of weeks ago, Mr. Andi asked me what I’d like to have for Christmas this year. My brain was blank. For the first time in, um…ever, I honestly couldn’t think of a single thing I wanted. I have everything I need, and most of what I want – at least if you take […]

Continue reading…

The Good, the Bad, and the Invisible

July 3, 2012

Last week was tumultuous for me. Nathan’s image went viral on Facebook, prompting friends and strangers alike to say wonderful things about him and my family, and to share it with their friends. Unfortunately, not all comments were kind. In fact, some of them were downright vicious. Several people reached out to me to ask […]

Continue reading…

The Good News About Prenatal Tests for Down Syndrome

June 14, 2012

Reports place the Down syndrome abortion rate (i.e., the termination of babies diagnosed in utero with trisomy 21) at between 85-92%, as I’ve mentioned before. A key takeaway, though, is “diagnosed in utero.” While that 9 out of 10 statistic is jaw-droppingly horrifying, it’s only part of the story. Until the 2011 release of MaterniT21, […]

Continue reading…

A Tale of Two Babies: Part One of a Two-Part Series on Prenatal Testing

June 13, 2012

On Monday, I learned that a friend of a friend gave birth this week to a girl – a baby with Down syndrome (I’ll call her “C”); the family didn’t know about the extra chromosome in advance. A few years ago, I would probably have thought, “Oh, that’s too bad. I’ll pray for them.” Instead, […]

Continue reading…

Wrongful Birth, or the Wrong Attitude?

May 17, 2012

On Tuesday morning, I heard a story on NPR about wrongful birth lawsuits. Two states are currently considering laws to prevent parents from suing a doctor who “fails to warn them about fetal problems.” Find a transcript and audio of the story here. The debate will continue to wage on about whether or not these […]

Continue reading…

Doctor, Heal Thyself

January 26, 2012

I’ve been thinking a lot about the case of Amelia Rivera and how it relates to MaterniT21, the blood test to detect Down syndrome which was released last year. In an age when inclusion has become commonplace, opportunities for people with disabilities are greater than ever before, and modern medicine is improving at an astronomical […]

Continue reading…

Highs, Lows, and a Girl Named Amelia

January 17, 2012

For all of my talk about “more alike than different,” one crucial element about our family is very different from families with only typical children: the fight for acceptance, inclusion, and equality for our differently-abled kids. In our world, the highs are extra high; the lows are extra low. Last week, Nathan and I spent six […]

Continue reading…