heartache

On Clouds and Sunshine

July 10, 2014

It probably comes as no great shock to hear that I have struggled with the blog this summer. What you may not know is why. It’s not a lack of time or a shortage of topics that plagues me, but a fear of ripping off my emotional Band-Aids and letting the wounds ooze out onto […]

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How Things Are Really Going

July 3, 2014

No matter where I go these days (which, admittedly, isn’t that many places) or who I talk to, the question I always get is “How are things going?” What people mean, of course, is how is Sarah Kate doing – has she recovered from the surgery, is she progressing in therapy, and so on. I […]

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Dead Last Finish is greater than Did Not Finish, which trumps Did Not Start

January 16, 2014

A couple of weeks ago, my daughter, Sarah Kate, who has cerebral palsy, came home from running club with a flyer for the First Light Marathon Fun Run – a 1.2-mile event being held in Mobile on January 12. I was registered for the half marathon, and I was happy that she was so excited […]

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The Thrill of Victory, The Agony of Defeat … and Something New to Trouble Me

October 8, 2013

I am defeated. After several weeks of watching Sarah Kate struggle with one of the worst growth spurts she’s faced, I began to wonder if the orthopedist was wrong and we couldn’t afford to wait two more years to consider surgery. She couldn’t stand for softball practice, and her “crouch” was highly pronounced. It was […]

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To the Lady in the Black Sedan…

June 4, 2013

I get it. I understand why you did what you did. The main parking lot is a pretty long walk from the building, and the circular drive out front is always a clusterfark during pickup and dropoff for swim team. Your kids are old enough to be left at practice by themselves (I’m guessing 7-8?) […]

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It’s a Rainy Day in the Neighborhood

January 10, 2013

I’m in a funk. I’ve been training for the Walt Disney World marathon for months. It’s not my first go ’round running a marathon. In fact, it’s not even the first (or the second) attempt at the Disney marathon in particular. But I did plan for it to be my best. In 2009, I was […]

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The Heartache I Didn’t See Coming

November 29, 2012

Here in Mayberry, the kids wear uniforms to school. Uniforms are a parent’s dream. No grousing over what to wear in the mornings, no arguing about what to buy in the store during back-to-school shopping, and it’s pretty easy to find inexpensive tops and bottoms that fit the dress code. Because we live in a […]

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A Special Needs Mom’s Heartache: Not What You Expect

March 1, 2012

I know that when some people look at my family, they see heartache. They see struggles. They think to themselves, “Thank goodness that’s not me.” They imagine that my life is difficult, that I am sad most of the time, and that I want to escape from the hell that I’m living in because I […]

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Facing My Fears…Because She Has None

February 9, 2012

The great irony of parenting a child with a disability is that one of the things you want most for them – full inclusion, with no strings attached – is often sabotaged not by the actions of others, but by your own fears. When Sarah Kate wanted to sign up for swim team, every ounce […]

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Highs, Lows, and a Girl Named Amelia

January 17, 2012

For all of my talk about “more alike than different,” one crucial element about our family is very different from families with only typical children: the fight for acceptance, inclusion, and equality for our differently-abled kids. In our world, the highs are extra high; the lows are extra low. Last week, Nathan and I spent six […]

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