Hello, World! It’s Baby Megan!

Many of you have asked for updates on Baby Megan, the daughter of Mr. Andi’s cousin who was born last summer with osteogenesis imperfecta (brittle bone disease). Well, ask and you shall receive… The family was recently profiled by the Associated Press (available on USA Today’s website, ironically…) and the video is embedded below. For those of […]

We Want to Be Treated Like Everyone Else…Except When We Don’t

Despite the apparent forcefulness of last Tuesday’s rant on the Robert Ethan Saylor case, I struggled with the decision to post about it. The story picked up a lot of steam following the grand jury’s decision not to indict, but I’d been watching the case for weeks. In fact, I had a draft written several […]

Parenthood, You Broke My Heart

Monday was a holiday, both for Mr. Andi the kids. He opted to take Nathan fishing (a story in itself – be looking for a guest post from Mr. Andi later this week) while Sarah Kate and I stayed home. After the mad rush of the holidays and marathon weekend, I thought I’d spend the […]

The Gift of Baby Megan

On Tuesday, Baby Megan was born in a hospital in Colorado. Her parents were told months ago that she would not survive birth. They were given no hope for their daughter. Her in utero diagnosis is one of those couched in the dreaded phrase “incompatible with life.” She was expected to be stillborn or to […]

The Good, the Bad, and the Invisible

Last week was tumultuous for me. Nathan’s image went viral on Facebook, prompting friends and strangers alike to say wonderful things about him and my family, and to share it with their friends. Unfortunately, not all comments were kind. In fact, some of them were downright vicious. Several people reached out to me to ask […]

What the Levy Wrongful Birth Case Told the World About Down Syndrome

The recent “wrongful birth” case of the Levy family bothers me on many levels. I want to understand how loving parents could rationalize filing a lawsuit claiming that their daughter’s birth was wrongful. I don’t want to judge them or the jury that awarded them $2.9 million – truly, I don’t. I sat on this […]

Highs, Lows, and a Girl Named Amelia

20120107-37.web

For all of my talk about “more alike than different,” one crucial element about our family is very different from families with only typical children: the fight for acceptance, inclusion, and equality for our differently-abled kids. In our world, the highs are extra high; the lows are extra low. Last week, Nathan and I spent six […]

The Power of Language

Google-search-mentally-disabled-woman-murdered

African-American. Gay and lesbian. Disabled person. What do you think of when you see these phrases? Nigger. Faggot. How do you feel when you hear or see these words? Retard. How is this word different from the previous two? Why do many in today’s society think it’s fine to use the words retard or retarded, […]

One Week Later: What My “Cowards” Post Was About (And What It Wasn’t)

Stop Disability Slurs, r-word

Last Wednesday, I experienced first hand what “going viral” really means. Cowards: “The Change-Up” and Disability Slurs was picked up by r-word.org and subsequently exploded. My email was pinging like mad with notifications of comments, new Twitter followers, and new Facebook likes. Welcome, new followers! Most of the comments were supportive, and I am grateful. […]

Words

The word to describe the driver who cut you off is: inconsiderate. The word to describe the way that you tripped and fell is: clumsy. The word to describe the request that your boss made is: ridiculous. The word to describe the joke you thought wasn’t very funny is: silly. The word to describe the […]