special needs

We Want to Be Treated Like Everyone Else…Except When We Don’t

April 9, 2013

Despite the apparent forcefulness of last Tuesday’s rant on the Robert Ethan Saylor case, I struggled with the decision to post about it. The story picked up a lot of steam following the grand jury’s decision not to indict, but I’d been watching the case for weeks. In fact, I had a draft written several [...]

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How to Weather a Hurricane

August 29, 2012

Make no mistake – hurricanes are serious business. The post that follows was drafted on Tuesday, well before anyone knew the severity of flooding that would occur as a result of Isaac. It was not meant to make light of the situation – quite the contrary. My intent was to demonstrate, through humor, that many [...]

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How the Push Girls Are Like Special Needs Moms

July 5, 2012

Despite my initial disappointment that the Push Girls are all women whose disabilities were due to injury or illness, I’ve fallen in love with the show. Very little of it appears contrived, the women are candid and authentic, and the show feels more like a serial documentary than most reality show fare. Although the four [...]

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Wrongful Birth, or the Wrong Attitude?

May 17, 2012

On Tuesday morning, I heard a story on NPR about wrongful birth lawsuits. Two states are currently considering laws to prevent parents from suing a doctor who “fails to warn them about fetal problems.” Find a transcript and audio of the story here. The debate will continue to wage on about whether or not these [...]

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This Is How I Do It

December 26, 2011

Happy Holidays! I hope that you all had a wonderful Christmas (and/or whatever other holiday you celebrate in December). Other than a few minor glitches, we had a laid back, stay-at-home family Christmas at home. Today we begin the deconstruction of the tree in anticipation of Sarah Kate’s birthday tomorrow. Ellen Seidman of Love That [...]

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The Rainbow Connection

December 1, 2011

I often speak about prenatal testing and the decision that many people make to terminate a pregnancy when the baby is diagnosed with Down syndrome. On the other side of that coin, however, are the people who choose to have a child with Down syndrome or other special needs. Some of these families, such as [...]

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Godspeed, Steve Jobs

October 8, 2011

I admit it. I’m a bit of an Apple fangirl. I’ve owned two Macs, multiple iPhones, AppleTV, and an iPad. I’ll admit something else. I’m pretty sure that I’m addicted to all of these gadgets that Mr. Jobs brought to our world, especially the iPad. Whether I’m playing Angry Birds, reading blogs or a book, [...]

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5 Reasons Special Needs Moms Should Run Marathons

August 25, 2011

I’m lazy, yet I’ve completed five marathons. It seems counterintuitive, but I assure you that it’s not. Often, I am approached by others with a question that goes something like this: I just ran my first 5K, and I loved it, but a marathon is 26 miles! How do you do it? I always tell [...]

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Would You Swim in an Integrated Pool?

June 21, 2011

Four summers ago, the film adaptation of the musical “Hairspray” (itself an adaptation of a non-musical movie) was released. I vaguely knew what the storyline was – overweight girl who loves to dance, set in the civil rights era – and took Sarah Kate to see it. As expected, she loved the music and dancing [...]

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Advice for My New Mom Self: Special Needs Edition

June 2, 2011

In talking with other moms of very young children with cerebral palsy, I’ve found that we share many common emotions and concerns.  I recently met a local mom whose baby was recently diagnosed.  I don’t want to reveal any details about her on a public blog, but speaking with her did get me to thinking [...]

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