An Open Letter to Friends and Family of Special Needs Parents


Do you mean what you say? You should. Because parents like me, with special needs kids and lots of irons in the fire, are counting on it. We all fail at meaning what we say and saying what we mean. I don’t claim innocence or perfection in this arena – not even a little bit. […]

Disney Cruise, Part 2: Sailing With Two Special Needs Kids


Based largely on Ellen’s review of the Disney Fantasy, I felt pretty confident going in that it would be a good experience. What I wasn’t sure about was what the experience would be like for OUR family. Every kid with special needs is different, and we have two! How would a Disney cruise go for our […]

Is Sarah Kate’s Story Inspirational, or Inspiration Porn?


There’s no doubt that the two videos RunDisney produced about Sarah Kate were meant to inspire people. The marathon and half marathon are on many people’s bucket lists, and with good reason: they present a challenge, within reach of ordinary people, that require a lot of hard work and willpower to complete. The #WhyIRunDisney video series features many […]

Sorta-Confessions of a CP Parent


A couple of years ago, Sarah wrote a post, Confessions From a CP Adult, that I saved to my “Post Ideas” notebook in Evernote. I have dozens of ideas, going back over three years, in that notebook, most of which I will never use. But I re-read Sarah’s post recently and in light of the fact […]

Let’s Chat About the 504 and the IEP


Ah, yes, it’s that time again. The start of the school year, you mean? Well, yes, but it’s also the dreaded season of IEP 1 and 504 2 meetings. Nathan has the first, and Sarah Kate has had both (she has a 504 plan at the moment), so I’ve done both in years past – and […]

On Clouds and Sunshine

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It probably comes as no great shock to hear that I have struggled with the blog this summer. What you may not know is why. It’s not a lack of time or a shortage of topics that plagues me, but a fear of ripping off my emotional Band-Aids and letting the wounds ooze out onto […]

What Is My Responsibility to the Special Needs Community?


When Sarah Kate aged out of early intervention at three years old, she qualified for public (i.e., developmentally delayed) preschool, just as Nathan did seven years later. We opted not to send her, choosing to place her in private preschool instead, because our philosophy was that because she would need to learn how to navigate […]

How My Children Have Helped Me Become Perfectly Human

Amy Julia Becker, author of A Good and Perfect Gift: Faith, Expectations, and a Little Girl Named Penny graciously invited me to contribute to her “Perfectly Human” series on her blog over at this week. The post begins: I was raised to achieve things. I was a third-generation valedictorian of my high school class, like […]