Seven Snippets: Zoom Ball, Waiting Room Therapy Sessions, and Pick a Sister: Elsa or Anna

September 19, 2014

— 1 — If your child goes to physical therapy, are you familiar with Zoom Ball? Because we most certainly are. In 2006, I have a photo of Sarah Kate playing Zoom Ball with her therapist, Carrie, in Birmingham following her rhizotomy. In 2014, I have an almost-identical photo of Sarah Kate playing Zoom Ball […]

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VIDEO(s): A Little Happy and A Little Progress

June 5, 2014

First I want to say how much I appreciate how you all have stuck with us over these past several weeks. I’ve mostly kept my regular blogging schedule, but I’ve been flying by the seat of my pants doing it. It’s been tough. Keeping an energetic small boy (who is used to being more-or-less the […]

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The Adventures of Letterman

December 12, 2013

Faster than a rolling O Stronger than silent E Able to leap capital T in a single bound It’s a word, it’s a plan…it’s Letterman! [Please humor me and tell me you know what childhood television show that quote above comes from…TIP: It’s not Sesame Street] I don’t post a whole lot of video here, […]

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Behind the Scenes Commentary on The Ten Year Marathon

June 11, 2013

Last Thursday, I posted an updated video (embedded above) showing the progress Sarah Kate has made in her gross motor skills over the seven years since she underwent selective dorsal rhizotomy surgery at age three. I had intended to include a commentary of the video when I posted it, but as I was editing it and […]

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VIDEO: The Ten Year Marathon: Seven Years Post-SDR Update

June 6, 2013

I can’t believe my baby is ten years old. Okay, so I know she’s been ten for almost six months now, but the end of the school year really cemented it in my mind. She’s not a baby anymore, and she really isn’t even a little girl, either. I got to thinking a few weeks […]

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Toddler Tunes: Down Syndrome Myths Redux

June 12, 2012

Today’s post is not what I had planned. I was drafting a piece on the good news about prenatal testing for Down syndrome, but I got a little bit sidetracked. Which is to say that instead of editing my writing, I edited some video instead. Remember when I posted the video of Nathan dancing to […]

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Cerebral Palsy, Field Day, and the Epic Struggle of Good Against Evil

June 5, 2012

Last week, I kept seeing headlines in my Google Reader about a video of an eleven year old boy, Matt, with cerebral palsy running the 400 meters at his school’s field day. It was covered by MSNBC, Fox News, the Washington Post – even the UK’s Daily Mail – and many others. I initially shunned […]

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VIDEO: Down Syndrome Myth Busting

January 3, 2012

My myth busting methods aren’t exactly scientific, but I’d say the video below affirms one myth – that people with Down syndrome love music – and busts another – that people with Down syndrome have difficulty problem solving. You’ve already seen Nathan’s moves in action. Now take a look at a new trick he’s mastered. […]

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Andi Speaks….Again

October 10, 2011

As I mentioned in last Friday’s 7 Quick Takes, today I was scheduled for two speaking engagements. The first was at a metro-Atlanta area Mothers of Preschoolers (MOPS) meeting; the second was the first installment of a series on diversity sponsored by Georgia Highlands College. I’ll post more later on my whirlwind speaking tour but […]

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Still Think the R-word Isn’t Hurtful?

September 19, 2011

Witness the power of a sister’s love. Warning: you’ll need a tissue. Thanks to Anna of The Chronicles of Ellie Bellie Bear for sharing.

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